The skin is the largest organ of the human body.

Our skin plays a key role in protecting the body against microbes and excessive water loss. The skin also has important function such as insulation, temperature regulation and sensation.

There are many types of skin conditions and many Australians are battling everyday to manage them, some can deeply impact in their quality of life.

This page is dedicated to debra and individuals who suffer from a rare genetic skin disease known as Epidermilysis Bullosa (EB).

Link Healthcare and debra, the patient support organisation for people who suffer from EB, have a long-term partnership. This partnership is based on a relationship that involves:

  Respect for independence

 Achieving and maintaining public trust 

 Fairness s

 Openness and Transparency

 Accountability 

 II

It is with these principles in mind that Link created "Help Us To Help Them" campaign on this website. The goal is to raise awareness for EB and donate funding for debra Australia.

When you purchase a DermaSilk® garment from this website, Link will donate $1 per garment (regardless of its type, size or cost).

We encourage you to read on and learn more about debra and EB.   

 

What is Epidermoysisys Bullosa (EB)? 
EB is a rare genetic skin disease whereby the skin blisters and peels at the slightest touch. This is why we call our EB children the 'butterfly children'; because their skin is said to be as fragile as a butterfly's wings. Living with EB has been likened to living with third degree burns.  It is very painful, and sufferers must be bandaged every day with dressings to protect and medicate their wounds. debra website 
 
Who is Debra? 

DebRA is a network of support for Australian families and patients with EB. DebRA is represented in most Australian States & Territories with DebRA Australia being the national support body. 

DebRA offers advocacy, financial support, emotional support and networking opportunities to families who are living with EB.  DebRA Australia also uses donations to fund local and international research into a cure for EB.

 
Debra’s Vision: Working for a life free of pain 
 

Debra’s Mission: 
debra Australia provides ongoing support and information for individuals, families, and professionals living and working with Epidermolysis Bullosa (EB), ensuring all research and best practice treatments are investigated leading to improved quality of life for all. 

In brief debra is:

  • Funded solely by voluntary donations.
  • Investigating and implementing ways to help sufferers in their daily lives.
  • Educating the general public and health care professionals about EB.
  • Raising money for vital research into EB.